We wish we had more answers but unfortunately I think this hospital stay just left us with more questions. Her tube has been dislodged slightly but evidently that is "ok" according to the doctors. She tolerated her feeds during this stay with minimal vomit... and the blood and discharge we saw at home stopped without medical intervention. Could a flu bug really cause all this chaos? I pray the answer is yes and that we're on the road to recovery. Time will tell.
We were lucky to see our favorite nurse Miss Katie! As always, she provided wonderful care and it is so nice to see a familiar face in such a stressful environment. We will focus on the smiles Cecily is doling out and the babble that just won't stop. In fact, I found myself so sleep deprived during this stay that I was wishing she would stop talking just so we could all get some sleep! (Now that I am not crazed I find this quite humorous given how many nights I lay awake praying and willing her to make a single sound). I was also very happy to hear her cry for Mama when she was upset or in pain. I really feel she knows me and that she is communicating! Nurse Katie asked Cecily to crawl and she got on all fours and look at me as if to say - see Moma! I was so proud. I think she even tried to say "night night"... or something very close. When we woke up today I was being lazy and talking to her from my chair/bed. She kept waving at me and it filled me with energy to see her so happy and so active.
Perhaps the hardest thing of this week was being away from Noah and Daddy. While I left twice to run home and give him hugs - Noah missed his Mommy and his sister. He said he didn't want to be healthy and that he wanted to go to the hospital. This breaks my heart and I just hope that we can work harder to make him feel loved, supported and special. This is the hardest challenge of having a child with special needs. All children are special. All children have needs. Balancing the load and ensuring everyone gets what they need is the most difficult thing for us as parents. We hope to get home early enough for a family trip for frozen yogurt and a lazy movie-filled evening. Ok... little one is awaking and it is time for lots of cuddles and kisses. There could never be too many... Onwards and upwards!