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22Q and the Big Blue Event!

3/30/2015

2 Comments

 
Posting on behalf of the event organizers!

Please join us for a fun annual gathering of families and friends affected by 22q 11.2 DS! This year, our San Diego families will all meet at Scripps Birch Aquarium on May 17!

22Q 11.2 DS is the second most common diagnosed genetic anomaly and is poised to be number one as more professionals come to understand that Digeorge Syndrome, VCFS, Schpritzen Syndrome, Cayler Cardio Facial Syndrome and others are all one in the same. 22Q 11.2 DS  is the the second most common cause of childhood genetic heart disease, the number one genetic link to cleft lip and palate, and can be responsible for over 80 other symptoms. Over 70% of individuals with 22q 11.2 DS diagnosed after 2001 have an Autism or ASD diagnosis and 20% have some form of mental health diagnosis. Please share the attached flyer with any special needs organizations, health care providers, and families living with 22q 11.2 DS.

Thank you!!
22q_and_the_big_blue.docx
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2 Comments
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