Cecily's Closet
  • Home
  • Room Makeovers
  • Equipment Recycling
  • Belly Bands
  • SD Resources
  • Cecily's Blog
  • Team

She can do it!

8/10/2011

1 Comment

 
This is the look of a determined little girl.  She is presently staring at an adorable little boy and trying very hard to get his attention. She giggled. She wiggled.  She waved. He is precious but clueless.  He opted for his toy water gun. You can't win them all.   She was ready to give him a BIG hug and she did blow him a few kisses. Can you say flirt? 
Picture
Cecily has not had an easy week so we must celebrate the victories that she did have.  This week she had the BEST horseback riding lesson with her pony BlueBelle.  It was glorious!  While there were still a few tears - she was up and riding and having fun with Miss Kathy and Ingrid and her friends.  We know she loves her horsies and it is magical to see her pet and feed them.  If you have heard about horse therapy and wondered what the fuss was about.... I encourage you to check it out!

Cecily is a girl on the go! In addition to her horse lessons,  she had two swimming lessons that were equally victorious.  She just learned to submerge and did about 7-8 or submersions today in the water.  She can do it! She was so proud and so pleased with herself.  She works so hard and to see her smiling with the knowledge that she DID it - is priceless.  She always looks up to see who is watching her - eagerly awaiting a smile, a clap or a cheer!

I just wish that these moments could last forever.  Unfortunately, Cecily's feeding challenges continue. She is not tolerating her bolus feeds and she has vomited a few times this week.  The questions outweigh the answers but we are not giving up.  We have seen glimpses of what a tear-free day can be and we will get there.  If anyone has suggestions for Cecily we are all ears.  We are considering taking her to CHOC or UCLA for more opinions.  We just know life should not have to be this hard for her.  We won't accept that "an unknown genetic syndrome" is causing her pain. 

I picked up Noah from school today and he informed me that his friend's baby was already walking.  I knew what was coming... "How come Cecily is still not walking Mom?"  Cameron's baby is walking.  I told Noah that she was working very hard and that if we keep working with her - she will walk, too.  I said I know she can do it! We just need to be patient and she will do it when she is ready.    Fast forward to dinner.  "How come Cecily can't eat?"  This is a more frequent question these days.  He understands that she has GERD but tonight he wanted to know why she had so many teeth...
"Mom, with that many teeth she should be eating..."

I smiled. 

And then as if on demand, Cecily lifted the apple to her lips and put it in her mouth.  Noah cheered!  That's my angel.  "Mom, she is doing it!"  "She put it in her mouth and she is moving it around!"  He was so proud.  He told Cecily, " That's a good girl Cecily.  You're a good baby." 

I could have cried but that would have confused Noah. 

Cecily continued to put carrots in her mouth and move them around.  She didn't chew but she explored and that is a step in the right direction.

Noah was thrilled.  "She can do it Mom."  Now it was Noah's turn to reassure me.   I love that kid.  I love both my kids.  It was a perfect end to a rough day.

Onwards and upwards!








1 Comment
Karen
8/10/2011 08:54:01 pm

Noah never ceases to amaze me with his capacity for understanding - and embracing - his sister's challenges. And he so gets it when there's victories to celebrate! God bless you, Rachel, for being able to keep the tears in -- you are so strong. xoxo

Reply



Leave a Reply.

    Noah, Cecily & Cason's Mom

    Follow the ravings, rantings, stories, and challenges of a Mom of three as she
    attempts to see everything with the glass half full! Who knew being a Mom could
    be so much fun and so much work! Warning... this blog does not come with spell check...

    Picture

    RSS Feed

    Archives

    January 2019
    October 2018
    November 2017
    June 2017
    April 2017
    October 2016
    August 2016
    July 2016
    June 2016
    April 2016
    February 2016
    October 2015
    September 2015
    August 2015
    May 2015
    April 2015
    March 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    April 2012
    March 2012
    February 2012
    January 2012
    December 2011
    November 2011
    October 2011
    September 2011
    August 2011
    July 2011
    June 2011
    May 2011
    April 2011
    March 2011
    February 2011
    January 2011
    December 2010
    November 2010
    October 2010
    September 2010
    August 2010
    July 2010
    June 2010
    May 2010
    April 2010
    March 2010

    Categories

    All
    Cecily Update
    Gratitude
    Infantile Spasms

Mailing Address:
270-F N. El Camino Real #457
Encinitas CA 92024

Cecily's Closet  -  Tax ID 27-2245113