From the mouth of babes... We're driving along and I'm trying to get a sense of how Noah is feeling about the past week and the chaos of our lives. He chatters on about school, Superman and his birthday (which is not for months...) and then he says he wants Cecily to be a baby forever. I am not sure if I hear him correctly so I ask him to repeat himself. He begins to explain that Cecily is getting too big and her wants her to be a baby. He continues on about how he likes babies and she is just getting big! I smile to myself and wonder if this has anything to do with the fact that Cecily, now increasingly mobile, can find her way over to his lego buildings and destroy them with one simple grab.
Fast forward a few days... We're driving home from Rady's Childrens Hospital, having devoted most of the day to Cecily's three appointments, picking up meds and more medical supplies. It was not quite the Friday Fun Day that we strive for but Noah was not complaining. Sure, he had a few outbursts here and there but all-in-all not so bad for a three year-old tagging along. One would think at this point that he has had it with babies and Cecily's hectic schedule. We come to a stop-sign and I wait for a young Dad adn his two babies to cross the street in their double stroller. Noah shouts from his car seat, "Hey Mama, that guy has two babies. He has to give us one. We need another baby!" I look in the rearview mirror and see a mini-Brien (Noah's Dad) staring back at me. He is serious. He is not kidding. Despite everything he has endured this year he wants to share his parents with another baby.
Today we said goodbye to Cecily's Physical Therapist, Karla. I was very sad. Karla has worked with us for more than a year and I'm sure pretty sure the therapy helped all of us, not just precious Cecily. She involved Noah in the sessions and she was so good with Cecily. She is a wonderful person, a patient therapist and an advocate for children with special needs. We wish her well on her return home to Wisconsin to take care of her parents. This is just another sign of what an amazing person she is. She will be missed!
And finally, after our recent hospital stay Cecily is once against thriving on all fronts. She is greeting us in the morning with smiles and her vomit has decreased significantly. She still has a very bad cold and a nose that won't stop running - but that won't keep her from improving her new tricks. She will scoot, army crawl, roll, and slide her way to Noah and his toys. She perks up when she hears his voice and she is quite proud of her new accomplishments. She got to meet her Auntie Madeleine and Uncle Peter for the first time - and she impressed them with her alert demeanor and fun-loving smiles.
And speaking of genetics... we received the results of Cecily's SMS test and she does not have it! We're less interested in a label and more interested in finding some clues to help the doctor's alleviate her pain and chronic vomiting. We're hoping that her upcoming surgeries will alleviate her troubles and enable her to embark on the next phase of her development. For now, we're enjoying Cecily, Noah, and the joys of watching the bond between them grow. And as Noah reminded us - we're trying to relish the time she is a baby because it is all going by too quickly! Onwards and upwards!
Fast forward a few days... We're driving home from Rady's Childrens Hospital, having devoted most of the day to Cecily's three appointments, picking up meds and more medical supplies. It was not quite the Friday Fun Day that we strive for but Noah was not complaining. Sure, he had a few outbursts here and there but all-in-all not so bad for a three year-old tagging along. One would think at this point that he has had it with babies and Cecily's hectic schedule. We come to a stop-sign and I wait for a young Dad adn his two babies to cross the street in their double stroller. Noah shouts from his car seat, "Hey Mama, that guy has two babies. He has to give us one. We need another baby!" I look in the rearview mirror and see a mini-Brien (Noah's Dad) staring back at me. He is serious. He is not kidding. Despite everything he has endured this year he wants to share his parents with another baby.
Today we said goodbye to Cecily's Physical Therapist, Karla. I was very sad. Karla has worked with us for more than a year and I'm sure pretty sure the therapy helped all of us, not just precious Cecily. She involved Noah in the sessions and she was so good with Cecily. She is a wonderful person, a patient therapist and an advocate for children with special needs. We wish her well on her return home to Wisconsin to take care of her parents. This is just another sign of what an amazing person she is. She will be missed!
And finally, after our recent hospital stay Cecily is once against thriving on all fronts. She is greeting us in the morning with smiles and her vomit has decreased significantly. She still has a very bad cold and a nose that won't stop running - but that won't keep her from improving her new tricks. She will scoot, army crawl, roll, and slide her way to Noah and his toys. She perks up when she hears his voice and she is quite proud of her new accomplishments. She got to meet her Auntie Madeleine and Uncle Peter for the first time - and she impressed them with her alert demeanor and fun-loving smiles.
And speaking of genetics... we received the results of Cecily's SMS test and she does not have it! We're less interested in a label and more interested in finding some clues to help the doctor's alleviate her pain and chronic vomiting. We're hoping that her upcoming surgeries will alleviate her troubles and enable her to embark on the next phase of her development. For now, we're enjoying Cecily, Noah, and the joys of watching the bond between them grow. And as Noah reminded us - we're trying to relish the time she is a baby because it is all going by too quickly! Onwards and upwards!
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