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Help is Available! You Just Need to Know Where to Look!

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This page is dedicated to providing families the information about the wealth of programs, products and activities for children with special needs.

Mommy tips from Cecily's Closet

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We've create a few from the heart resources about the things we've learned along our journey. At the end of the day, there can never be too many kisses!     

Nurses Nook

Siblings Corner
Advocate

San Diego Kids! Check it Out!

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All kids need to have fun! Check out San Diego Kids. This is a great resource center dedicated to listing the places, activities, festivals, events for ALL children to enjoy in San Diego! And be sure to check out the kids section for San Diego Bargain Mama before you go...

I Love a Tubie

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Check out I Love a Tubie! on Facebook and the I Love a Tubie web site!  They started a feeding tube awareness and week and so much more! All the info you need on being a parent to a tubie using child!

Resource Guide

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San Diego Family Magazine, Flourishing Families Issue.  This is a must have guidebook for parents of children with special needs!

Poway Valley Therapeutic Riding Center PoVa

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Poway Valley Therapeutic Riding Center (PoVa) offers therapeutic horseback riding to children and adults with special needs.   The lessons are led by the program’s Executive Director, Ingrid Mourey who is a certified NARHA Advanced Instructor and an army of trained professionals!

San Diego Resources

Here is the skinny on the information we have found very helpful! 

San Diego Family Magazine - Flourishing Family Guide
The San Diego Family Magazine publishes a Resourde Guide that is a bible for parents of children with special needs. Imagine all of the information you need in one place! Thank you Emily Dolton for driving this project and making such an amazing difference for children with special needs.

Exceptional Family Resource Center
The Exceptional Family Resource Center is a community-based collaborative agency staffed by parents and professionals. It is designed to serve families of individuals with special needs. Services include parent support groups, access to local programs, parent training, referrals and more. They have a complete listing of sites that service families of special needs children. 

San Diego Early Start Program
California Early Start is a federally funded program through Part C of the Individuals with Disabilities Education Act (IDEA). The program is designed to ensure that eligible infants and toddlers and their families receive evaluation and assessment of their current functioning and coordinated services early enough to make a difference in development. Learn more about the Servicesthat are available for children.  Recent budget cuts are impacting the Early Start guidelines. You can learn more here.

Each Regional Center in California has a separate, independent advocacy office to help families w/their Regional Center services.  If you need help with your services, contact Wendy Dumao, Client Rights Advocate at 619.239.7787
Learn more here.

United Cerebral Palsy of San Diego County
This organization offers so many valuable programs for children with any type of disability.  The organization's goal is to advance the independence, productivity, and full citizenship of people affected by cerebral palsy and other disabilities.  I had the opportunity to meet with the program director and I was amazed at what they offer! You must take the time to visit their site.  I've tried to capture the highlights to encourage you to read more!

Respitality - the "hospitality" of local hotels is combined with "respite" care to create "mini-vacations" for parents who have special needs! For more information call 858.571.7803 or email info@ucpsd.org.   

Toy Library - The UCP believes in the importance of play in a child's development.  They offer a mobile toy library that travels around the county making designated stops at local churches, libraries and recreation centers. This program serves children from age 2-6 .Families can borrow toys for two weeks, return them and get new ones to try out! If you're interested in learning more, call 858.278.5420 or email kfreeborn@ucpsd.org.

San Diego Assistive Technology Center - This is really cool! They provide assistive technology resources to the community including equipment loans, open lab sessions for the public to explore and try out equipment, to full team assessment services, especially in the area of augmentative and alternative communication devices and computers.  Learn more by going to www.ucpsdtechcenter.org. Or you may call 858.278.5420 or email sdatc@ucpsd.org!

Pete's Fund - Need equipment or something specific that insurance or Medical won't cover? You can apply for a cash grant to help fund specific expenses related to your child's disability. Through a simple application process, you could obtain help in the following areas: wheelchairs, walkers, diapers, specialized infant formulas, critical medications and more!

In addition to the specific programs listed above, the UCP of San Diego offers Support Groups for parents and siblings, adaptive aquatics for infants and children, and general help for navigating the tricky world of medical, insurance and advocating for your child.  Check them out - you and your child will be so glad you did!

The Down Syndrome Association of San Diego
This non-profit organization serves 1000 families and professionals in San Diego County. Established in 1978 by families with a need for a support and resource network, they assist parents with unique education, healthcare and social issues.
 
COMPASS Family Center
The COMPASS Family Center is a San Diego non-profit organization that provides family-centered supports for those caring for a child or adult with special needs.  COMPASS focuses on S. T. A. R. Services, Training, Advocacy and Research.

Rady Children's Hospital San Diego
Rady Children's has nearly 700 physicians and more than 1,000 nurses on staff, nearly 3,000 employees, 450 active volunteers, and more than 1,200 Auxiliary members . Check out their site to learn more about their services, speciality contacts, and health education information.

Children's Care Connection (C3 Program)
Children's Hospital offers FREE developmental screening (for children 18 months to 3 years) and numerous FREE parenting classes (topics for children 0-5 years of age). 

Children's Hospital offers FREE developmental screening (for children 18 months to 3 years) and numerous FREE parenting classes (topics for children 0-5 years of age).  Classes are offered at 3 sites: Solana Beach, San Marcos and Oceanside. Check out their website to learn about their services and to learn more about normal development patterns in children. Call (877) 8C3-KIDS for more information. Or check out their online schedule & calendar.

Rady Children’s Developmental Evaluation Clinic (DEC) offers developmental evaluation services for infants, preschoolers and school-age children. These services include:

  • Identifying developmental, learning and social delays
  • Determining the significance of delays and behavior problems
  • Determining the need for further assessment/intervention
  • Recommending participation in educational or therapeutic programs
  • Linking children and families to needed services
  • Providing comprehensive reports to parents and providers

Need Medical Supplies?

Check these sites first! Our therapists have recommended these sites and we've used several of them.

eBay
Yes, eBay. You can find deals from families selling their unused goods, and often times you can buy items in bulk! We've purchased everything from Duocal to therapy equipment on eBay.

Adaptive Mall
Adaptivemall.com offers the best selection of adaptive equipment for children with special needs. Their products range from special needs strollers to special needs car seats to adaptive toys. At Adaptivemall.com, you’ll find a variety of solutions for your child's adaptive equipment needs.

Beyond Play
Beyond Play focuses on young children with special needs. Their goal is to bring you a great selection of products that are all appropriate for Early Intervention. Their catalog and web site is designed for professionals of all disciplines, as well as for parents and caregivers.

Special Education Resources

Hope Infant Program
The HOPE Infant Family Support Program is a public special education program that offers services to infants and toddlers with special needs and their families. Check out their monthly calendar of events.

Special Education Resources on the Internet (SERI)

Special Education Resources on the Internet (SERI) is a collection of Internet accessible information resources of interest to those involved in the fields related to Special Education. This collection exists in order to make on-line Special Education resources more easily and readily available in one location. This site will continually modify, update, and add additional informative links.

Together We Grow
This child development and education program offers medically fragile children a place to grow and thrive through infant and pre-school programs.  Licensed through the Department of Health Services for Pediatric Day Health and Weekend Care.  For more information call 858.751.0506 for San Diego and 760.757.6031 for Oceanside.

Sunny Days
Sunny Days Early Childhood Developmental Services is an Early Intervention Provider serving children from birth to three years with developmental needs. Services are provided in natural environments that include family homes, child care settings and other community locations.

Kids Included Together (KIT)
Kids included Together (KIT) is a non-profit organization specializing in providing best practices training for community-based youth organizations committed to including children with disabilities into their existing recreational, social and child care programs.

KIT was founded on a promise to increase opportunities for children with and without disabilities to access recreational, child development and youth development programs. Recognizing the tremendous need in the community, KIT established the National Training Center on Inclusion (NTCI).

Team of Advocates for Special Kids (TASK) is a nonprofit charitable organization whose mission is to enable individuals with disabilities to reach their maximum potential by providing them, their families and the professionals who serve them with training, support, information, resources and referrals, and by providing community awareness programs. Initially, the primary focus was on children three to 21 years of age, but services evolved to include all ages, especially in the TASK Technology Center.

The Institute for Effective Education (TIEE)
(TIEE) is a California non-profit corporation in good standing. Incorporated for the purpose of providing education and other services to individuals with unique learning needs, TIEE operates four schools and several camps, provides extensive professional training, and conducts research on teaching methods, all in keeping with their Mission.

Need to Find Deals?

Kiddie Pool Equipment Funding
This is a really cool program! We have not used it but I can't imagine this not being a wonderful too for families in need!  It works like a fundraiser! You join the program and it builds a web site that speaks about your child and his or her needs. The goal is raise money in the form of gift certificates that can later be used to purchase special needs equipment for your child through credits Adaptive Mall.

Baby Cheapskate
You won't find deals on therapy or feeding supplies, but this is a great site for all things baby! From diapers to strollers, clothes to toys! Check this site before buying baby gear!

Equipment Shop
Like Beyond Play, the Equipment Shop carries specialized tools for oral stimulation, feeding and therapy. We have found this site to have very fair (not cheap!) prices!




Early Childhood Development

Home of Guiding Hands
Home of Guiding Hands believes every child deserves a meaningful life of love, laughter, learning, dreams and friendship regardless of ability.  They provide age appropriate educational services and therapeutic interventions using evidence-based practices.  Services are based upon the needs of children 0-3, who have been found eligible for the CA Early Start Program.

Center for Autism Research, Evaluation & Service (CARES)
CARES is a diagnostic classroom for children in the early elementary school years.  It is designed to provide a comprehensive evaluation of a child's academic and behavioral needs.

Parents Active For Vision Education (P.A.V.E.)
P.A.V.E. is a non-profit resource and support organization whose mission is to raise awareness of the crucial relationship between vision and achievement.

Kids on the Block of San Diego (KOBS)
Provides educational puppet programs which enlighten all children on issues of disability awareness, medical and educational differences and social concerns. KOBS serves all elementary schools in San Diego city and county.

Stein Special Care Services
Special Care Services (formerly Recreation Program) is an after-school socialization resource for participants with developmental disabilities between the ages of 4.9 and 25 years of age. Our Program is designed to work with the child's strengths to develop acceptable behaviors for success in the home, at school and in the community. The Program operates at the spacious Stein Education Center school campus in central San Diego. We are fully licensed by Community Care Licensing, State of California.

The Music Therapy Center of CA
The Music Therapy Center of CA promotes, empowers and serves families, profesionals and children with special needs utilizing music therapy strategies.

Advocates for Empowerment
Advocates for Empowerment provides special education and service advocacy.  They offer advocacy and supportive services to families caring for a child with special needs. All services are provided by legally trained advocates who have experience working with parents and indivdiuals with special needs.

Hair Salons for children with special needs

tHAIRapy Hair Salon - "for exceptional clientele"
tHAIRapy Hair Salon is a family salon specializing in and catering to our clientele with Autism and Special Needs. They have a sensory wall, wheelchair
accessible shampoo bowl & station,  and a specially trained therapy dog! 
 

Government Resources

New Government Healthcare site
Learn how the new legislation will impact you. Explore your coverage options and find out what public and private insurance plans, programs and community services are available for you!

Learn the steps involved in applying for disability benefits for children. An application for Supplemental Security Income (SSI) and a Child Disability Report are required. The Child Disability Starter Kit answers questions about applying for SSI for children and includes a worksheet that can help you gather the information you need to apply. For more information visit https://www.disability.gov/benefits/social_security_disability_benefits/children_with_disabilities

California Children Services
California Children Services (CCS) is a countywide program that treats children with certain physical limitations and chronic health conditions or diseases. CCS authorizes and pays for specific medical services and equipment provided by CCS approved specialists and has a Medical Therapy Program. For more information visit: http://www.sdcounty.ca.gov/hhsa/programs/sd/california_children_services/

Medical
Find out if you qualify for Medical! The information provided here will assist an individual in finding out if he/she qualifies as a Medi-Cal beneficiary, how to enroll and learn about available programs for children with special medical conditions and seniors needing personal care.  In addition, individuals may access general health information and resources unrelated to Medi-Cal.

Department of Managed Health Care
If you need help advocating for your child, seeking a second opinion, or ensuring you're getting what you deserve from your doctor and or your insurance provider, call the Department of Managed Health Care at 1-888-466-2219.

NECTAC
NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs. NECTAC serves all 50 states and 10 jurisdictions with an array of services and supports to improve service systems and outcomes for infants, toddlers, and preschool aged children with special needs and their families. Each state's Part C and Section 619 Program Coordinators have a contact person at NECTAC and request TA on behalf of their state programs. Funded since 2001, NECTAC and its predecessor TA projects have a foundation of over thirty-five years of technical assistance excellence in early childhood services.

Sports Resources

REINS
REINS is a 501(c)(3) non-profit Therapeutic Riding Program located in Fallbrook, California. At REINS, children and adults with disabilities learn how to ride horses. This is an intense form of therapy that benefits a wide range of abilities.  Their current enrollment is nearly 200 weekly students who come from all over the counties of Orange, Riverside and San Diego. Please contact them for more information.

Poway Valley Therapeutic Riding Center (PoVa) is a 501(c)(3) non-profit (status pending) organization offering therapeutic horseback riding to children and adults with special needs.   The lessons are led by the program’s Executive Director, Ingrid Mourey who is a certified NARHA Advanced Instructor.  She is working with Program Director Kathy Guiney, also a life-long equestrian and a California Credentialed Teacher with experience in special education.

PoVa Therapeutic riding strengthens the bodies, minds, and spirits of individuals with disabilities.  Our lessons are designed to focus on our riders’ abilities rather than their limitations.  Whether the disability is acquired or congenital, most anyone (with doctor’s clearance) of any age (no matter if they are 2 or 82) can ride.  Check out thier site!


Special Olympics
Special Olympics is a year-round worldwide program of sports training and athletic competition for all children and adults with intellectual disabilities. Through positive, successful experiences in sports, the athletes gain confidence and self-mastery--building a self-image of success rather than failure, carrying over into the classroom, home and workplace. Over 1,400 athletes are involved with the local Special Olympics program in San Diego County and over 2.5 million throughout the world.

Challenged Athletes Foundation
It is the mission of the Challenged Athletes Foundation to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics. The Challenged Athletes Foundation believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life. Grants are awarded for a wide range of physical challenges, across the entire spectrum of sport. CAF does not discriminate by age, disability, sport or level of ability. The hundreds of athletes assisted by CAF range from world class athletes competing on an international level to those who are recently disabled and are intent on becoming more active.

Miracle League
Miracle League is a charitable organization that provides children with mental or physical challenges an opportunity to play baseball as a team member in an organized league. In a unique public/non-profit partnership with the County of San Diego Parks and Recreation Department, and with the support of the San Diego Padres, this is the first ADA accessible ball field of its kind in Southern California. All games are played at the Miracle Field, a Little Padres Park, at San Dieguito County Park.

Sports for Exceptional Athletes
Sports for Exceptional Athletes creates enhanced opportunities to interact and form lasting friendships through shared sports and recreational activities. Athletes with developmental disabilities, families, friends, coaches, and volunteers are invited to play in the Greater San Diego Sports Festival.

Dance & Company
Dance & Company provides an opportunity for students of all levels, beginner, intermediate and advanced to receive not only a good foundation in dance training and practice, but also the fundamentals and education in the art of dance and dance history.  Classes are offered for children and adults of all ages in an accessible and affordable venue in San Diego . Classes are taught by experienced and credentialed instructors offering progressive teaching methods. Please check out these fun and encouraging classes.

More San Diego Resources

Big Animals for Little Kids
Big Animals for Little Kids is an all-volunteer organization here in San Diego. Our purpose is to bring joy into the lives of children, especially children facing health, emotional or socio-economic challenges. Wearing our Big Animals costumes, we regularly visit children in hospitals, homeless shelters and foster care facilities.  Click here to learn more.

My Child Without Limits
My Child Without Limits looks to provide you, your loved one’s best advocate, with the knowledge, resources, and network to ensure their future is without limits. While this site can be used by many people in many different ways, the site is divided into four sections: Understand, Plan and Act, Community and access to local Resources. If you are feeling overwhelmed with information and are feeling alone, check out this site. It takes a step by step approach to helping you understand what disability your child may have and helps you take the necessary steps to ensure you give your child the best start possible.  Click here to see the San Diego Resources.

Come Unity
The Children's Disability List of Lists provides an annotated list of Support Groups for families of children with disabilities and special needs. Each disability mailing and support group list is validated for usefulness and family orientation. This site has so much great information! Check out their book review section. This can be very helpful for extended family members who may be having a harder time adapting to change.

Special Needs Trust Foundation

A non-profit service developed to assist families establish special needs trusts for their loved ones with disabilities. Formed in 1989, the San Diego Special Needs Trust Foundation created a master trust to provide private support to persons with disabilities without jeopardizing their public support. Special needs are those things for which you or your family members are not entitled to receive government assistance. Through a Special Needs Trust, individuals or family members may leave assets to benefit themselves or their loved ones in a manner that is compatible with the continuation of public assistance.

Ronald McDonald Family Care Center
No one wants to spend time in the hospital. But Ronald McDonald house makes your stay a little easier. Ronald McDonald House, provides a home-away-from-home and more for families with seriously ill children in treatment at area hospitals. Seven days a week, 365 days a year, they provide lodging to family members of sick children who otherwise might sleep in hospital waiting rooms, in their car or drive long distances home and back. They also provide a Family Care Center for use during the day for anyone with a child in the hospital.

The California Bipolar Foundation
The California Bipolar Foundation provides free supportive services to families and young adults coping with bipolar disorder.  They also provide funding for bipolar research and mental health housing. Check out their site for more information on how they may be able to help your family.

Bedeev.com - Real Life Resources
Started by a family of a child with special needs, Bedeev.com knows the importance of being surrounded by loving friends, family members and acquaintances who are familiar with issues in medicine, public health, insurance, the law and special education. They understand that many other people are in similar situations and do not know where to find the information they need.  That's why they created a community website, BDeev.  Check out their site! It contains a directory of resources and information about health, healthcare and tangentially related issues and content. You can add, revise, comment and rate resources as well as provide other information that you believe others might find helpful. Pass it on!

Girl Scout Troop 3400 - Beautiful girls with different abilities
A group of Moms formed a Girl Scout Troop for girls with special needs. If anyone is interested in joining the group, they are serving the San Diego area in zip codes 92114 0 92139. For more information, contact the Troop Leader Paola at 619.475.1432 or email troop3400@yahoo.com.

Valeries List
Started over 10 years ago by a parent, the ValeriesList.com e-newsletters provide news and resources to over 1900 individuals in Southern California who are invovled in the Austism Spectrum Disorders (ASD) community. The e-newsletters contain information about articles, events, non-profit activities, parent inquiries, programs offered by professionals and private schools, research, support groups, and other items of interest.

TalkSense
TalkSense offers a number of independent specialist services including: assessment, consultation services, supply cover, support, tuition, training and advice for indvidual Learners and their families, schools and colleges, Education Authorities and businesses. To request further information or to book any of the services offered please contact Tony Jones at TalkSense.

National Resources - outside of SanDiego

Classic Rehab offers early intervention in New Jersey and other areas. They are devoted to providing each child with quality care through services including early intervention, occupational therapy, physical therapy, speech therapy, and more. Their dedicated therapists are devoted to helping children reach their full potential.  Call for more information.  732-367-1888

Friends Like You. Friends Like Me.
Friends Like You. Friends Like Me. is an educational community outreach
initiative of Children's Specialized Hospital, designed to help educate children
about autism spectrum disorder and provide the tools necessary to facilitate
friendships among children.

Girl Power 2 Cure
Girl Power 2 Cure, Inc. is a 501c3 nonprofit organization dedicated to raising awareness and funds for treatments and a cure for Rett Syndrome, a devastating neurological disorder that almost exclusively affects girls.

They are committed to making Rett Syndrome the first reversible neurological disorder by harnessing the spirit of girls to support fellow girls who are suffering. They support girls in the planning and implementation of events that raise awareness and funds for Rett Syndrome research, as well as support Rett families with resources, fundraising help and awareness tools.

Diabled Travelers.com
DisabledTravelers.com, a  resource dedicated to accessible travel information.
This new site will provide  you with information on businesses from around the
world that specialize in  disability travel.  A comprehensive listing of accessible travel specialists: Travel Agents, Tour  Operators, Adventure Travel Companies, Accessible Cruise Specialists, Accessible Van Rentals & Equipment, Travel Companions, Home Exchanges, and Access Guides for wheelchair users and other disabled travelers.

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270-F N. El Camino Real #457
Encinitas CA 92024

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