On top of the waiting... we have been extra busy with Cecily. Even without my
"day-job" I feel incredibly busy and my maternity leave is not quite the vacation I had planned. Poor little Cecily has had a series of ups and downs and we are now 100% convinced it is the perfect time to get a second opinion. The good news is we spoke to Cardiology today and Cecily does not need heart surgery and we will just continue to monitor her heart. In addition, her EKG was consistent with her last read (so abnormal but normal for Cecily) so we can continue with her new medication that is helping reduce some (not all) of her pain and it helps dramatically with her sleep.
The rest of the list is long and I'm too tired to go into the details. I will just say that we have the world's BEST pediatrician. Dr. Wood continues to amaze us with her ability to get stuff done! She always advocates for Cecily and she is always finding ways to make things better for our little angel. She accepts my late night calls, texts and over-the-top mouthfuls of information that pour out when I get fired up about Cecily. She has called in more than a few favors for us with friends and colleagues and we are just so grateful. We feel we made a lot of progress this week for Cecily's future and we owe it all to her!
A dear friend of ours had a very stressful health scare this week, too. It took Brien and I by storm and we were devestated when we heard the news. Luckily for her and her amazing family all is fine... but those 24-48 hours of waiting and thinking about "what if..." just served as yet another reminder that each day is so precious and to hug and love on the kids and fight for them because you never know when you just might not be here to do it. Hugs to our friends for handling the stress and for inspiring us with thier resilience!
I think our kids give us so much inspiration every day. Noah wakes us up (literally and physically) every day. He has so much energy and he just LOVES life and manages to find the fun in even the most boring activities... (ie. he thinks Home Depot is fun...) He continues to advocate for Cecily at his lovely school and makes sure his friends play nice when she visits in the afternoon. I am so proud of him!!! I could say a few funny/cute stories about just this week but I'll sum it up with this... he is the BEST big brother. He reminds me every day that Cecily CAN do anything if we are patient. And I just love watching him talk about her with his friends. It is precious. And Cecily just adores him. Her face is all smiles when he does his funny dances and He has made about ten signs to welcome baby Cason into our home. He is so excited. His excitement is contagious. We're excited too - just nervous about balancing everything and ensuring every kiddo gets just what they need from us. We are so grateful to have such a supportive family. We know we'll be taking help at every turn!
Onwards and upwards!