"V" is for vomit.  I hate to see Cecily struggle and we had some really great vomit free days. Why is it back? Was it too good to be true to hope the endoscopy changed everything? Is there another procedure in her future? Are we going to be able to stop her pain and provide her some relief? We had a swallow study today and watching her gag on the food and spit up in pain was not fun. I wish this was not happening to her.  I try to stay positive but sometimes when you're flying high you have further to fall when you hit a speed bump. 

But dwelling on the vomit or worrying about what might be isn't going to change it so I'll choose try to focus on the best part of the day: watching Noah splash about in his inflatable swimming pool.  Noah seems to be the best medicine for Cecily - and for me!  He loved making her smile as he splashed about and pretended to fall over and over and over.  I'm convinced he is part fish. He is definitely his Daddy's boy. He loves the water... and can't get enough of it!

We continue to be amazed at how Noah is handling everything. Yesterday and today, his hair-crazed sister grabbed two fists full of his shaggy blonde hair. She was squealing in delight and he was yelping in pain. (I can say this is very painful as I let her pull my hair because she gets so much joy out of it!) Instead of using his weight or size to make Cecily release his hair he shouted for Mommy and Daddy.  When we came running he was just quite calmly telling Cecily to stop and that we didn't pull hair! "Cec... we don't pull hair. Be gentle"... then he leaned in (within danger of a repeat hair pulling performance) and said, "I'm coming in for a kissie! I love you Cec!" I am not making this up! Even Cecily's nurse has remarked at how sweet he is with Cecily!

This is what I'll choose to remember from today! Onwards and upwards!

Cecily is thriving! We can't believe how happy she is and how she is responding to her toys. We are enjoying every minute. We have received more smiles over the last few days than we did over the last 13 months.  Even better - she is saying Mama... more and more! And I love that :)

We have received a lot of requests for decorative room makeovers!  Now if only the recycle program would take off! If you're reading this blog and you know of any local designers that may want to partner with us or offer their services - please tell them about Cecily's Closet! 

Tonight Grammy and Grampy are coming over so we can actually go out on a date! Yippee! A night out is exactly what we need right now.  We have so much to celebrate!  Onwards and upwards!