Someone is communicating up a storm! So many wonderful sounds are coming out of our sweet Cecily and we couldn't be more excited! With every passing day she is doing something new! She is starting to gesture in the direction of where she wants to go. This often comes out in the form of a tantrum but it IS communicating her needs and we are understanding and responding! When asked to turn on or off the light she will push as hard as her little, chubby fingers can press until the light appears. She gets so excited when we acknowledge this new accomplishment. We are so proud of her! And the words... they keep coming! She is really watching our lips and trying to repeat what she hears. She even said, "diaper" last night. I wasn't 100% sure this could be true so I called for Noah to hear it. He starts screaming Daddy Daddy - Cecily just said, "Da Da Diaper..." Why I need my lovely four year old to confirm things is beyond me these days but I sometimes have a tendancy to hear what I WANT to hear... so having him on the case is quite helpful! She also said, yes, water and door! To say this is a big deal is an understatement. The cognition and the direction she is giving (to us) and that she is responding to (from us) is amazing! I will never underestimate Cecily and her potential.
This weekend I sat through the ABCs of IEPs... for those of you with a child with special needs you know this process. Brien and I are just learning and trying to educate ourselves for when Cecily heads off to school - which could be in as little as six-months. We know we are not ready for this and we are not sure Cecily is ready either - but we don't want to misjudge the situation so we have a team of people helping us to make the best decision for Cecily. I know I am not ready for my baby to go to school! I see her as my baby even though Noah keeps telling me she is really a big girl now... (And he is right). Ahhh from the mouths of babes...
Sadly despite the wonderful progress from Cecily, Grammy Cecily continues to struggle but we pray she is turning the corner soon. She completed her sixth and final round of chemo but the impact is taking its toll as she prepares for her next drill - radiation! I know she will handle this with grace and strength but I hope that she starts to feel better soon. We miss our spunky Grammy.
In addition this week we said goodbye to Grandma Ackerly, Brien's paternal Grandmother. She lived a long and full life and will be dearly missed. Luckily Brien was able to travel back to VA to visit with her prior to her passing. Grandma Ackerly, Pat to her friends, was a remarkabe person that touched a lot of lives. She will be missed and we know she is looking down on us from heaven and smiling as she reunites with her beloved son and husband in heaven.
We are praying that this next week is better. It seems we have had a few hurdles of late but what does not kill you will just make you stronger! We will make it through this.
Onwards and upwards!
This weekend I sat through the ABCs of IEPs... for those of you with a child with special needs you know this process. Brien and I are just learning and trying to educate ourselves for when Cecily heads off to school - which could be in as little as six-months. We know we are not ready for this and we are not sure Cecily is ready either - but we don't want to misjudge the situation so we have a team of people helping us to make the best decision for Cecily. I know I am not ready for my baby to go to school! I see her as my baby even though Noah keeps telling me she is really a big girl now... (And he is right). Ahhh from the mouths of babes...
Sadly despite the wonderful progress from Cecily, Grammy Cecily continues to struggle but we pray she is turning the corner soon. She completed her sixth and final round of chemo but the impact is taking its toll as she prepares for her next drill - radiation! I know she will handle this with grace and strength but I hope that she starts to feel better soon. We miss our spunky Grammy.
In addition this week we said goodbye to Grandma Ackerly, Brien's paternal Grandmother. She lived a long and full life and will be dearly missed. Luckily Brien was able to travel back to VA to visit with her prior to her passing. Grandma Ackerly, Pat to her friends, was a remarkabe person that touched a lot of lives. She will be missed and we know she is looking down on us from heaven and smiling as she reunites with her beloved son and husband in heaven.
We are praying that this next week is better. It seems we have had a few hurdles of late but what does not kill you will just make you stronger! We will make it through this.
Onwards and upwards!
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