Next week Cecily will have an endoscopy in hopes of finding out what is causing her continual pain. We've had a rough week. She continues to vomit multiple times throughout the day despite the fact that she shouldn't be able to vomit at all since her fundoplication. We are happy to finally have this on the calendar! Thank you to Nurse Nancy and Dr. Wood for pushing to get this done quickly! It is so nice to have advocates for your kids. I know it would not have happened without their help.
In addition to the endoscopy, the doctors will swap out Cecily's g-tube for a j-tube... I was just becoming a g-tube expert so hopefully this will be an easy transition. We've learned not to put all our eggs in this basket but we are optimistic that this change could make a big difference for Cecily!
We joined a meet up group for parents of children with special needs today. I'm hoping that this will help us build our online community so we can share stories and help other families.
The outpouring of support from old friends, new friends, co-workers and family continues to inspire us. Thank you! Onwards and upwards!
In addition to the endoscopy, the doctors will swap out Cecily's g-tube for a j-tube... I was just becoming a g-tube expert so hopefully this will be an easy transition. We've learned not to put all our eggs in this basket but we are optimistic that this change could make a big difference for Cecily!
We joined a meet up group for parents of children with special needs today. I'm hoping that this will help us build our online community so we can share stories and help other families.
The outpouring of support from old friends, new friends, co-workers and family continues to inspire us. Thank you! Onwards and upwards!
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